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AN00150430-00000106-0095  
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Title
Title 『新しい遺伝学』の家族社会学 : 家族・親族の医療化と病名告知を手がかりに  
Kana 『アタラシイ イデンガク』 ノ カゾク シャカイガク : カゾク・シンゾク ノ イリョウカ ト ビョウメイ コクチ オ テガカリ ニ  
Romanization Atarashii idengaku no kazoku shakaigaku : kazoku shinzoku no iryoka to byomei kokuchi o tegakari ni  
Other Title
Title The family sociology of the new genetics : a consideration of "medicalization of family and kinship" and "telling the truth"  
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Romanization  
Creator
Name 武藤, 香織  
Kana ムロウ, カオリ  
Romanization Muto, Kaori  
Affiliation ブラウン大学医学部地域保健学教室:慶應義塾大学医学部  
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Place
東京  
Publisher
Name 三田哲學會  
Kana ミタ テツガクカイ  
Romanization Mita tetsugakukai  
Date
Issued (from:yyyy) 2001  
Issued (to:yyyy)  
Created (yyyy-mm-dd)  
Updated (yyyy-mm-dd)  
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Physical description
 
Source Title
Name 哲學  
Name (Translated)  
Volume  
Issue 106  
Year 2001  
Month 3  
Start page 93  
End page 121  
ISSN
05632099  
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Abstract
The purpose of this paper is to review its brief history and to present some new perspectives for further studies in the family context. During the past two decades, the ELSI (Ethical, Legal and Social Implication) Program of the Human Genome Project has stimulated the sociology of new genetics. This relatively new field of sociology has discussed various topics as at-risk health status, genetic counseling, lay perspective and so on. Yet, the family context has been a neglected area though it is a major issue in late onset conditions like Huntington's disease or in cancer genetics. Kaja Finkler, one of a few advocators who discuss the family context, describes social influences by the new genetics as "medicalization of family and kinship". Based on her point of views, the author presents future research agendas in Japan and indicates "telling the truth" -explanations from physicians to the family and communication among the family- would be the first issue to discuss, showing some discourses from Japanese families with Huntington's disease.
 
Table of contents
はじめに
1. 「新しい遺伝学の社会学」の動向
2. 新しい遺伝学と家族
3. 「家族の医療化」による影響をどう考えるか
 (1) 家庭内告知の早期化
 (2) ファンタジー・ボンドの医療化
 (3) 完璧な子ども探し
4. 遺伝病であることをどう伝えるか : 日本での「病名告知」の現状
 (1) アメリカと日本での前提の違い
 (2) 日本での研究の契機
  (2-1) どうやって伝えられたか
  (2-2) どうやって伝えるか
おわりに : 「禁忌」の構造を考えることから始める
 
Keyword
 
NDC
 
Note
特集変容する社会と家族
投稿論文
 
Language
日本語  
Type of resource
text  
Genre
Journal Article  
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Last modified date
Oct 05, 2010 09:00:00  
Creation date
Oct 05, 2010 09:00:00  
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Index
/ Public / Faculty of Letters / Philosophy / 106 (200103)
 
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